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Hello!

I found myself in the unexpected role of special needs parent almost overnight in 2012, when my otherwise healthy four-month-old son experienced a 45-minute seizure. After a hospitalization that included a spinal tap, CT scan, and an initial diagnosis of RSV, we returned home — unaware that our lives had changed forever.

More seizures followed over the next year, and by the time my son was two, his development had noticeably slowed. Genetic testing eventually brought answers: a diagnosis of Dravet Syndrome, a rare and severe form of epilepsy that is often resistant to medication. In 2021, he also received a diagnosis of Autism Spectrum Disorder.

Like many parents raising children with complex needs, the past fourteen years have held profound challenges alongside deep love, growth, and resilience. I’ve experienced the fear, the grief, the overwhelm, the advocacy battles, and the emotional exhaustion — but I’ve also learned how powerful informed, supported parenting can be.

Carinne Mossa, Founder of It Takes a Village Special Needs Parent Coaching LLC

My background in Psychology and Elementary Education has been essential, not only in supporting my son but in helping my entire family navigate the complexities of special needs parenting. I’ve had the unique perspective of sitting on both sides of the IEP table — as a classroom teacher working in collaborative special education settings and as a parent advocating fiercely for my own child. I’ve worked closely with educators, administrators, physicians, attorneys, and support teams to ensure children receive the services they are legally and ethically entitled to. That dual perspective shaped the work I do today. Through my advocacy efforts, I’ve helped families:

  • Secure special education services for students whose IEPs had previously been denied or dismissed

  • Obtain district-funded private school placements when public settings were unable to meet a child’s needs

  • Recover compensatory education services for students who were denied mandated supports due to staffing shortages

  • Strengthen IEPs to reflect meaningful, appropriate goals and accommodations

In 2025, I was proud to secure a registered trademark for my signature coaching framework, The P.E.A.C.E. Protocol for Medically Complex Parenting® — a structured, research-informed, and experience-rooted approach designed to help parents move from survival mode to sustainable confidence and clarity. Knowing how many parents begin this journey without professional training, insider knowledge, or strong advocacy support is what drives my work. As a mother who has lived this life, an experienced educator, and an active member of C.O.P.A.A. (Council of Parent Attorneys and Advocates), I am deeply committed to walking alongside families with compassion, honesty, and practical guidance.

You deserve support.
You deserve clarity.
You deserve someone in your corner.

And you don’t have to navigate this alone.

AS FEATURED ON

A logo for The Lucas Project linking to Carinne's blog called "Alone in a Crowded Room"
Logo for the NC Health News featuring an article about teacher shortages featuring an in depth interview with Carinne and others
Host of the Special Ed Rising podcast alongside a photo of Carinne Mossa, founder of It Takes a Village Special Needs Parent Coaching LLC
Lup Wai, host of The Learning Curve podcast is shown
The artwork for The Unfortunate Privilege podcast is shown with a photo of a father and son holding hands walking along the ocean shoreline

Resource Partners

A bio for Carinne Mossa, founder of It Takes a Village Special Needs Parent Coaching is listed under the title The Special Needs Collective
The logo for Apex Social Group is shown, a turquoise background with two handprints and the word apex written in white
The logo for Rare Patient Voice
Logo for New York University

Carinne holds a

Master of Arts Degree in Communications

from

New York University's

Steinhart School of Education 
 

Logo for Southern Connecticut State University

Carinne holds a

Bachelor of Arts Degree in Psychology

and a 

Bachelor of Science Degree in Elementary Education 

from 

Southern Connecticut State University 

Logo for the Council of Parent Attorneys and Advocates
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